First Steps: A Checklist

For Caregivers of Autistic Children

Receiving an autism diagnosis for your child can bring a mix of emotions and many questions. This checklist is designed to help you navigate the initial steps, providing a clear path forward as you begin this journey.

Understanding the Diagnosis

Educate yourself about Autism Spectrum Disorder (ASD), its variations, and common characteristics.

Allow yourself time to process your emotions and seek support if needed.

Connect with local and online autism support groups for parents.

Prepare a list of questions for your child's diagnostic team and follow-up appointments.

Building Your Support Team

Ensure your pediatrician is knowledgeable about autism or find one who specializes in developmental pediatrics.

Consult with various therapists (e.g., Speech, Occupational, ABA, Physical) to understand potential interventions.

If applicable, begin discussions with your child's school about special education services and an Individualized Education Program (IEP).

Consider parent counseling or therapy to help manage stress and adapt to new challenges.

Navigating Services & Resources

Research early intervention programs (for children under 3) or school-based services.

Understand your health insurance coverage for autism therapies and services.

Explore state and local financial assistance programs or grants for families of children with disabilities.

Learn about advocacy organizations that can provide guidance on rights and resources.

Prioritizing Family & Self-Care

Establish routines and predictable environments at home to support your child's needs.

Celebrate your child's unique strengths and interests.

Arrange for respite care or seek support from family/friends to prevent burnout.

Prioritize your own physical and mental wellbeing; you cannot pour from an empty cup.

You're not alone on this journey.

Take it one step at a time, and remember to celebrate every milestone.

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